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General Information and Support |
American
Cancer Society
800-ACS-2345 (800-227-2345)
www.cancer.org
Offers a variety of services to patients and their
families through its Cancer Resource Network. The ACS also supports
research, provides printed materials and conducts educational
programs. |
National
Cancer Institute
800-4-CANCER (800-422-6237)
www.cancer.gov
A comprehensive site about cancer, including prevention, a glossary,
clinical trial information and listings and links to cancer centers. |
CancerCare
www.cancercare.org
Offers free support, information, financial assistance and practical
help to people with cancer and their loved ones. |
Lance
Armstrong Foundation
512-236-8820
www.laf.org
Helps people with cancer and their loved ones through advocacy,
education, public health and research. |
LIVESTRONG SurvivorCare Program
866-235-7205
www.livestrong.org/survivorcare
This program provides education, information about
treatment options and new treatments in development, counseling
services and assistance with financial, employment or insurance
issues. |
Fertile
Hope
888-994-4673
www.fertilehope.org
A nonprofit organization dedicated to educating
cancer patients about fertility issues. |
National
Center for Complementary and Alternative Medicine
888-644-6226
www.nccam.nih.gov
Provides the latest news, research, events and
clinical trials involving complementary medicine. |
National
Coalition for Cancer Survivorship
877-622-7937
www.canceradvocacy.org
Provides information and resources on cancer support,
advocacy and quality-of-life issues. |
Patient
Advocate Foundation
800-532-5274
www.patientadvocate.org
Provides education, legal counseling and referrals to
survivors concerning managed care, insurance, financial issues, job
discrimination and debt crisis matters. |
People
Living with Cancer
703-797-1914
www.plwc.org
The patient information website of the American
Society of Clinical Oncology, the leading professional organization
representing oncologists. |
Ulman
Cancer Fund for Young Adults
888-393-3863
www.ulmanfund.org
Provides support programs, education and resources to
young adults with cancer. |
MD Anderson Cancer Center
800-392-1611
www.mdanderson.org
One of the
world’s most respected centers devoted exclusively to cancer patient
care, research, education and prevention. |
Planet
Cancer
www.planetcancer.org
An online community for young adults with cancer that
also offers retreats. |
Chemotherapy and Beyond
www.chemocare.com
Scott Hamilton’s chemotherapy site offers the latest
chemo information for cancer patients and their families, caregivers
and friends. They are here to help by supplementing what
you may already have learned from your healthcare professional. |
Cancer and
Careers
www.cancerandcareers.org
Cancer and Careers is committed to changing the face
of cancer in the workplace by providing a comprehensive website,
free publications, and a series of support groups and educational
seminars for employees with cancer. |
Know Cancer Community
www.knowcancer.com
Know Cancer is dedicated to connecting, educating and
empowering all people affected by the many forms of cancer. Through
the power of knowledge and collective wisdom we will help people to
prevent, endure and survive cancer. Our current focus is
KnowCancer.com, an online community that provides social and
professional support to patients and their loved ones. |
National Center for Complementary and Alternative Medicine
* National Institutes of Health
http://nccam.nih.gov/
The National Center for Complementary and Alternative
Medicine (NCCAM) is the Federal Government's lead agency for
scientific research on complementary and alternative medicine (CAM).
NCCAM sponsors and conducts research using scientific methods and
advanced technologies to study CAM. CAM is a group of diverse
medical and health care systems, practices, and products that are
not presently considered to be part of conventional medicine. |
MortgageLoan.com - Rates, News & Advice since 1995
Housing & Mortgages for People with Disabilities
http://www.mortgageloan.com/disabilities/
This guide has been created to help
individuals living with disabilities, and their family members, in
the process of buying a home of their own. Here you can learn more
about the five important steps in buying a home and about financial
assistance programs that are available for you living with
disabilities, who want to buy a home. This is not a solicitation! |
Cancer Links
www.cancerlinks.com/sitemap.html
Provides resources and valuable information for both patients and
professionals on how to improve and promote high-quality cancer care
and ways to improve quality of life and reduce toxicities of therapy
through more effective and efficient means of promoting a
cooperative and mutual association between the medical profession,
cancer patients, and their families. |
WCRF/AICR Expert Report, Food, Nutrition, Physical Activity and
the Prevention of Cancer: a Global Perspective
http://www.dietandcancerreport.org/
The production of the Second Expert Report,
Food, Nutrition, Physical Activity
and the Prevention of Cancer: a Global Perspective, has
been a huge undertaking for the WCRF global network, involving over
100 scientists from 30 different countries. WCRF/AICR commissioned
and funded the report, but the content has been driven by an
independent panel of 21 world renowned scientists. The Expert Panel
worked for five years to assess the research and their conclusions
and recommendations are firmly based on the scientific evidence. |
CancerHelp UK
http://www.cancerhelp.org.uk/
CancerHelp UK is the patient information
website of
Cancer Research UK. They provide a free information service
about cancer and cancer care for people with cancer and their
families. They believe that information about cancer should be
freely available to all and written in a way that people can easily
understand. |
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Hospice |
Maine Hospice Council
(207) 626-0651
www.mainehospicecouncil.org/main_hospices.htm
There are many hospice programs in Maine
providing services such as pain and symptom management, respite
care, psychosocial support, spiritual support, transportation,
education and bereavement support. These are community-based
volunteer programs and Medicare-certified programs providing
services through a structured network of trained volunteers, clergy,
nurses, therapists and counselors working in cooperation with the
individual's primary physician. Regardless of how a hospice program
is structured or organized, whether it is a division of a home
health agency, hospital-based, or community-based, all programs
emphasize the use of trained volunteers as well as professionals in
meeting individual and family needs. The link above lists
local hospices by area. |
National
Hospice and Palliative Care Organization
800-658-8898
www.caringinfo.org
Association of programs that provide education to patients and their
families on hospice. |
National
Association for Home Care
202-547-7424
www.nahc.org
Provides educational materials and information on how to choose home
care and hospice care and hospice care providers |
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Travel and Housing |
Road to Recovery
(800) ACS-2345
The American Cancer Society's Road to Recovery
program provides free transportation to cancer patients for
medical/treatment appointments related to their diagnosis. (i.e.
cancer care, including treatment, tests, medical procedures,
follow-up appointments, etc.). Rides are provided by volunteer
drivers who donate their time and the use of their personal
vehicles. Rides are offered to those without other means of
transportation. |
Cancer Care Fare (Discounted Train Fare to Boston)
(800) ACS-2345
The
Amtrak Downeaster has partnered with the American Cancer Society to
offer a significant discount for medical travel. This allows
one patient and one companion to travel for $10.00 one-way or $20.00
round-trip per person. Valid on all trains Monday-Friday.
Travel must originate in Maine and terminate in Woburn or Boston
ONLY. |
National
Association of Hospital Hospitality Houses
800-542-9730
www.nahhh.org
Provides free or discounted accommodations for
families and patients receiving medical treatment away from home. |
Angel
Flight America
800-446-1231
www.angelflightamerica.org
Network of pilots who provide transportation to patients traveling
for treatment. |
Gary's House
(207) 773-9800
www.mercyhospital.org/content/garyshouse.htm
Gary's House is a hospitality home in southern Maine
for families of patients undergoing medical treatment in a Portland
area hospital. The home is a Federal-style duplex, offering nine
bedrooms and six community rooms (kitchen, dining room, living room,
family room, playroom and laundry area). Generally, families may
stay as long as their family member is hospitalized. Guests most
often stay up to two weeks, but special arrangements may be made if
a longer stay is needed. |
Ronald McDonald House
(207) 780-6282
www.rmhportland.org
Ronald McDonald House of Portland,
Maine, is a not-for-profit organization dedicated to providing
affordable, safe and supportive temporary home-like housing to
families of seriously ill children receiving treatment at nearby
hospitals and medical facilities. Ronald McDonald Houses provide a
"home-away-from-home" for the families of seriously ill children, up
to age 21, receiving care and treatment in areas hospitals. |
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Caregiver/Family Information |
Care Pages
866-981-4900
www.carepages.com
CarePages
are free, personal, private web pages that help family and friends
communicate when someone is receiving care. |
Caring Bridge
651-452-7940
www.caringbridge.org
CaringBridge is a
free, nonprofit web service that connects family and friends to
share information, love and support during a health crisis,
treatment and recovery. |
Tender Living Care Program -
Center for Grieving Children
(207) 775-5216
www.cgcmaine.org
The Tender Living Care program at the Center for
Grieving Children helps families that have been impacted by a
life-threatening illness. Adults want to know what, when and
how to tell children about the illness. Children may have
questions but not ask them out of concern for adults. |
eHope
(207) 856-7340
www.ehope.nu
eHope helps to form care giving communities
which provide non-medical physical, social and emotional support for
a loved one who faces a life-threatening illness. They give
training, support and technology which enables people to form a
circle of support around a loved one that is not bound by distance
or time constraints. |
Lotsa Helping Hands
365 Boston Post Road, Suite 157, Sudbury, MA 01776
www.lotsahelpinghands.com
Lotsa Helping Hands is a simple, immediate way
for friends, family, colleagues, and neighbors to assist loved ones
in need. It’s an easy-to-use, private group calendar, specifically
designed for organizing helpers, where everyone can pitch in with
meals delivery, rides, and other tasks necessary for life to run
smoothly during times of medical crisis, end-of-life caring, or
family caregiver exhaustion. It’s also a place to keep these
‘circles of community’ informed with status updates, photo
galleries, message boards, and more. |
CareRunner
(847) 922-1584
www.CareRunner.com
CareRunner offers a wide range of tools designed specifically for
non-professional caregivers. The site is free and their goal is
simply to relieve some of the stresses of coordinating care for a
loved one. CareRunner members are able to coordinate care
activities, communicate with family and friends, manage health and
prescription records, learn more about health conditions as well as
caregiving strategies and will soon be able to search for valuable
caregiving goods & services. |
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Employment Rights Information |
Disability Rights Center of Maine
(207) 626-2774
www.drcme.org
The Disability Rights Center of Maine's mission is to
advance and enforce the rights of individuals with disabilities.
Services include information about rights and service systems;
referrals to appropriate services; representation of individuals at
meetings and hearings; legal representation of individuals or
groups; and training on rights and advocacy skills. |
US Department of Labor
"Family and Medical Leave Act of 1993"
www.dol.gov/esa/whd/fmla/ |
US Equal Employment Opportunity Commission
"Americans with Disabilities Act of 1990"
www.eeoc.gov/types/ada.html |
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Resources by Cancer Type |
Bladder Cancer
Bladder Cancer Advocacy Network
301-469-6865
www.bcan.org
Aims to improve public awareness of the
disease and increase research directed toward the diagnosis,
treatment and cure of bladder cancer.
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Brain Tumors
American Brain Tumor Association
800-886-2282
www.abta.org
Offers free publications, educational programs,
support group lists, physician list, a pen pal program and social
service consultations by telephone.
National Brain Tumor Foundation
800-934-CURE (800-934-2873)
www.braintumor.org
Provides patients and their families with information
on how to cope with their brain tumors.
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Breast Cancer
Susan G. Komen Breast Cancer Foundation
800-IM AWARE (800-462-9273)
www.komen.org
Provides breast health and breast cancer educational
materials, holds events around the country, advocates for breast
cancer research and prevention and funds research.
Breast Cancer Network of Strength
800-221-2141
www.networkofstrength.org
Breast Cancer Network of Strength, formerly known as
Y-ME National Breast Cancer Organization®, provides immediate
emotional relief to anyone affected by breast cancer. The mission of
Breast Cancer Network of Strength is to ensure, through information,
empowerment and peer support, that no one faces breast cancer alone.
YourShoes™ is Breast Cancer Network of Strength’s peer support
program that includes a 24/7 breast cancer support center staffed by
trained breast cancer survivors providing peer support through a
toll-free hotline, e-mail and support groups.
Breast Cancer Resources from OncologySTAT
http://www.oncologystat.com/cancer-types/breast-cancer.html
Breast Cancer is one of the most commonly diagnosed cancer types
that affect the world and we want to give your students a direct
link to our spotlight page on this topic. OncologySTAT is committed
in providing up to date news, journal scans, chemotherapy regimens,
interviews with reputable doctors and informative videos.
OncologySTAT's mission is to improve worldwide cancer care and
prevention by providing healthcare professionals with immediate
integrated access to the most authoritative evidence-based
information available.
Sisters Network, Inc.
866-781-1808
www.sistersnetworkinc.org
Seeks to increase local and national attention about
the impact breast cancer has in the African-American community.
BreastCancerStories.com
603-759-5640
www.breastcancerstories.com
BreastCancerStories.com
is an online support community where those touched by breast cancer
can share their experiences with loved ones and with one another.
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Colorectal Cancer
Colon Cancer Alliance
877-422-2030
www.ccalliance.org
Offers patient support, a resource center, news, research advocacy
and events.
C3: Colorectal Cancer Coalition
703-548-1225
www.fightcolorectalcancer.org
Advocates for research to improve screening,
diagnosis and treatment of colorectal cancer.
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Esophageal Cancer
Esophageal Cancer Awareness Association
866-730-ECAA (866-730-3222)
www.ecaware.org
Promotes support for esophageal cancer patients and
caregivers.
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Head and Neck Cancer
Support for People with Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org
SPOHNC is a patient-directed,
self-help organization dedicated to meeting the needs of oral and head
and neck cancer patients. They concentrate on providing current information
for oral and head and neck cancer patients who are trying to gain a
better understanding of their illness and their lives.
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Kidney Cancer
Kidney Cancer Association
800-850-9132
www.kidneycancerassociation.org
Offers information about the diagnosis and treatment of kidney
cancer, sponsors support groups and provides physician referral
information.
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Leukemia / Lymphoma / Myeloma
The Leukemia and Lymphoma Society
800-955-4572
www.lls.org
Provides financial aid for specified treatment
expenses and transportation, family support groups, First Connection
(a professionally supervised peer support program), referrals and
school re-entry materials.
Multiple Myeloma Research Foundation
203-972-1250
www.multiplemyeloma.org
Supports research grants and professional and patient
symposia on multiple myeloma and related blood cancers.
Provides a newsletter, referrals and information.
National Marrow Donor Program
800-MARROW-2 (800-627-7692)
www.marrow.org
Keeps a registry of potential bone marrow donors and
provides information, patient advocacy aid assistance and free
patient education materials.
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Lung Cancer
It's Time to Focus on Lung Cancer
877-646-5864
www.lungcancer.org
Offers education, resources, clinical trial
information, support groups, teleconferences, an e-newsletter and
news updates.
Lung Cancer Alliance
800-298-2436
www.lungcanceralliance.org
Offers educational programs about lung cancer,
psychosocial support and advocacy about issues that concern lung
cancer patients and those at risk for the disease.
Lung Cancer Support Community
www.lchelp.org
A collection of patient discussion threads and forums
with broad participation that helps foster a true sense of community
for patients and families of those with lung cancer. Funded by the
LUNGevity Foundation, the only organization in the United States
dedicated exclusively to funding lung cancer research.
Mesothelioma Essentials
www.mesolung.org
Provides asbestos victims and their families
with quality medical referrals to help inform and educate when
facing deadly asbestos related diseases.
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Ovarian Cancer
Ovarian Cancer National Alliance
202-331-1332
www.ovariancancer.org
Works to increase public and professional
understanding of ovarian cancer and to advocate for research.
Distributes materials and sponsors an annual advocacy conference for
survivors and families.
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Pancreatic Cancer
Pancreatic Cancer Action Network
877-2-PANCAN (877-272-6226)
www.pancan.org
Educates health professionals and the general public
about pancreatic cancer to increase awareness of the disease.
Information about support networks, clinical trials and
reimbursement for care are available.
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Prostate Cancer
Maine Coalition to Fight Prostate Cancer
www.mcfpc.org
The Maine Coalition to Fight Prostate Cancer (MCFPC) was established
in December 2005. The Coalition was developed by a group of prostate
cancer survivors and their spouses. Members of the Coalition share
the desire to raise awareness of prostate cancer and the importance
of early detection.
The Maine Coalition to Fight Prostate Cancer is dedicated to
ending the devastating impact of prostate cancer on men, their
loved ones and the State of Maine.
National Prostate Coalition
www.4npcc.org
Provides outreach, awareness and advocacy for
prostate cancer.
US®TOO!
International
800-80-US TOO (800-808-7866)
www.ustoo.org
Educates newly diagnosed prostate cancer patients,
offers support groups and provides information about treatment.
YANA - You Are Not Alone Now Prostate Cancer Support Site
www.yananow.net
To provide
comfort to any man diagnosed with prostate cancer,
to offer
thoughtful support to him and his family and to help them to decide
how best to deal with the diagnosis by providing them with and
guiding them to suitable information, being mindful at all times
that it is the individual's ultimate choice that the path he decides
to follow is his own and that of his family, based on his particular
circumstances.
Prostate Cancer InfoLink
http://prostatecancerinfolink.net/
Offering the most user-friendly and personalized
prostate cancer information on the web. The “New” Prostate
Cancer InfoLink web site contains three general types of
information: Detailed Articles, a Daily Blog, and an Online
Mentoring Service.
His Prostate Cancer
www.hisprostatecancer.com
If the man you love has prostate cancer, this web site is for you.
It provides information to support you and your loved one as you
make important decisions, such as choosing among the many treatment
options. It also provides information about potential problems or
concerns that may arise before or after treatment.
The Prostate Cancer Research Institute
1-800-641-PCRI
www.pcri.org
The objective of PCRI is to educate patients and their families
about prostate cancer. This includes new advances in diagnosis,
staging, treatments and available resources. PCRI believes that a
patient who understands his disease and treatment is empowered to
communicate more effectively with his physicians and obtain a better
outcome. PCRI intends to use all available communication tools to
accomplish this most important objective.
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Sarcoma
The Sarcoma Alliance
415-381-7236
www.sarcomaalliance.com
Provides education, support and guidance in finding
medical providers, treatment options and various other information
sources.
Sarcoma Foundation of America
301-520-7648
www.curesarcoma.org
Raises funds for sarcoma research, patient networking
and support.
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Skin Cancer
Melanoma Foundation of New England
(800) 557-6352
www.mfne.org
The Foundation also assists patients and their
caregivers struggling with melanoma by offering support groups,
educational programs, and Billy's Buddies, a new one-on-one patient
advocacy and support program. These programs are all free.
Melanoma International Foundation
888-463-6663
www.melanomaintl.org
Educates public on prevention and early detection of
melanoma, coordinates local screening and education programs and
serves patients and their families by operating a toll-free
patient/family hotline for those battling melanoma.
Skin Cancer Foundation
800-754-6490
www.skincancer.org
Increases public awareness of skin cancer, and
conducts public and medical educational programs.
The Shade Foundation
866-41-SHADE (866-417-4233)
www.shadefoundation.org
Founded by Shonda Schilling, wife of fmr Red Sox player,
Curt Schilling and melanoma survivor. Dedicated to eradicated
melanoma through education of children and the community in the
prevention and detection of skin cancer and the promotion of sun
safety.
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Thyroid Cancer
ThyCa: Thyroid Cancer Survivors' Association
877-588-7904
www.thyca.org
Provides support, education and communication for
thyroid cancer survivors, their families and friends.
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Local Links
MaineHealth |
Maine Center for Cancer Medicine
www.mccm.org |
www.GoodHealthMaine.com |
www.MaineHealth.org |
www.TrueNorthHealthCenter.org |
www.MercyHospital.com |
www.MaineCancer.org |
Maine Medical Center - Cancer Care |
www.cancerconnectionsmaine.org |
www.CancerCareYorkCounty.org |
eHope Foundation - Brings family & friends together
to help cancer patients |
www.ptla.org
Pine Tree Legal provides free legal help to
low-income people living in Maine. There is no charge for services,
but you may be asked to help with court costs. |
Metta MassageTherapy
Therapeutic and Relaxation Massage
Specializing in Cancer
and Chronic Conditions
www.mettamassagetherapy.com |
 Two
Roads supports people at those critical crossroads, when they must
make choices about new directions involving their health and
well-being, by providing opportunities to enter and experience the
natural world.
www.tworoadsmaine.org |
The Maine Coalition to Fight Prostate Cancer was
developed to raise awareness of prostate cancer and the importance
of early detection.
The MCFPC is dedicated to ending the devastating impact of prostate
cancer.
www.mcfpc.org |
 Awakening
Counseling & Coaching works primarily with people affected by
cancer - people any where on the “cancer continuum,” from those who
have just been diagnosed to those who finished treatment years ago,
as well as the partners/spouses, family members, and friends who
have also been affected by the diagnosis.
www.awakeningcounseling.com |
www.emh.org |
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