|
General Information and Support |
American
Cancer Society
800-ACS-2345 (800-227-2345)
www.cancer.org
Offers a variety of services to patients and their
families through its Cancer Resource Network. The ACS also supports
research, provides printed materials and conducts educational
programs. |
Cancer and
Careers
www.cancerandcareers.org
Cancer and Careers is committed to changing the face
of cancer in the workplace by providing a comprehensive website,
free publications, and a series of support groups and educational
seminars for employees with cancer. |
CancerCare
www.cancercare.org
Offers free support, information, financial assistance and practical
help to people with cancer and their loved ones. |
Fertile
Hope
888-994-4673
www.fertilehope.org
A nonprofit organization dedicated to educating
cancer patients about fertility issues. |
Lance
Armstrong Foundation
512-236-8820
www.laf.org
Helps people with cancer and their loved ones through advocacy,
education, public health and research. |
National
Cancer Institute
800-4-CANCER (800-422-6237)
www.cancer.gov
A comprehensive site about cancer, including prevention, a glossary,
clinical trial information and listings and links to cancer centers. |
National
Center for Complementary and Alternative Medicine
888-644-6226
www.nccam.nih.gov
Provides the latest news, research, events and
clinical trials involving complementary medicine. |
National
Coalition for Cancer Survivorship
877-622-7937
www.canceradvocacy.org
Provides information and resources on cancer support,
advocacy and quality-of-life issues. |
Patient
Advocate Foundation
800-532-5274
www.patientadvocate.org
Provides education, legal counseling and referrals to
survivors concerning managed care, insurance, financial issues, job
discrimination and debt crisis matters. |
People
Living with Cancer
703-797-1914
www.plwc.org
The patient information website of the American
Society of Clinical Oncology, the leading professional organization
representing oncologists. |
Ulman
Cancer Fund for Young Adults
888-393-3863
www.ulmanfund.org
Provides support programs, education and resources to
young adults with cancer. |
MD Anderson Cancer Center
800-392-1611
www.mdanderson.org
One of the
world’s most respected centers devoted exclusively to cancer patient
care, research, education and prevention. |
Planet
Cancer
www.planetcancer.org
An online community for young adults with cancer that
also offers retreats. |
Chemo Care
www.chemocare.com
This site is designed to provide the latest
information about chemotherapy to patients and their families,
caregivers and friends. They are here to help by supplementing what
you may already have learned from your healthcare professional. |
|
Hospice |
National
Association for Home Care
202-547-7424
www.nahc.org
Provides educational materials and information on how to choose home
care and hospice care and hospice care providers |
National
Hospice and Palliative Care Organization
800-658-8898
www.caringinfo.org
Association of programs that provide education to patients and their
families on hospice. |
|
Travel and Housing |
Angel
Flight America
800-446-1231
www.angelflightamerica.org
Network of pilots who provide transportation to patients traveling
for treatment. |
National
Association of Hospital Hospitality Houses
800-542-9730
www.nahhh.org
Provides free or discounted accommodations for
families and patients receiving medical treatment away from home. |
|
Caregiver/Family Information |
Care Pages
866-981-4900
www.carepages.com
CarePages
are free, personal, private web pages that help family and friends
communicate when someone is receiving care. |
Caring Bridge
651-452-7940
www.caringbridge.org
CaringBridge is a
free, nonprofit web service that connects family and friends to
share information, love and support during a health crisis,
treatment and recovery. |
Tender Living Care Program -
Center for Grieving Children
(207) 775-5216
www.cgcmaine.org
The Tender Living Care program at the Center for
Grieving Children helps families that have been impacted by a
life-threatening illness. Adults want to know what, when and
how to tell children about the illness. Children may have
questions but not ask them out of concern for adults. |
 A Family's Journey
a handbook for living with illness and finding
hopeThis book is presented by the
Center for Grieving Children and is an excellent resource for
families impacted by a life-threatening illness.
You can find out more about this book by clicking here. |
Lotsa Helping Hands
365 Boston Post Road, Suite 157, Sudbury, MA 01776
www.lotsahelpinghands.com
Lotsa Helping Hands is a simple, immediate way
for friends, family, colleagues, and neighbors to assist loved ones
in need. It’s an easy-to-use, private group calendar, specifically
designed for organizing helpers, where everyone can pitch in with
meals delivery, rides, and other tasks necessary for life to run
smoothly during times of medical crisis, end-of-life caring, or
family caregiver exhaustion. It’s also a place to keep these
‘circles of community’ informed with status updates, photo
galleries, message boards, and more. |
eHope
(207) 856-7340
www.ehope.nu
eHope helps to form care giving communities
which provide non-medical physical, social and emotional support for
a loved one who faces a life-threatening illness. They give
training, support and technology which enables people to form a
circle of support around a loved one that is not bound by distance
or time constraints. |
|
Employment Rights Information |
US Equal Employment Opportunity Commission
"Americans with Disabilities Act of 1990"
www.eeoc.gov/types/ada.html |
US Department of Labor
"Family and Medical Leave Act of 1993"
www.dol.gov/esa/whd/fmla/ |
| |
|
Resources by Tumor Type |
Bladder Cancer
Bladder Cancer Advocacy Network
301-469-6865
www.bcan.org
Aims to improve public awareness of the
disease and increase research directed toward the diagnosis,
treatment and cure of bladder cancer.
|
Brain Tumors
American Brain Tumor Association
800-886-2282
www.abta.org
Offers free publications, educational programs,
support group lists, physician list, a pen pal program and social
service consultations by telephone. |
National Brain Tumor Foundation
800-934-CURE (800-934-2873)
www.braintumor.org
Provides patients and their families with information
on how to cope with their brain tumors.
|
Breast Cancer
Sisters Network, Inc.
866-781-1808
www.sistersnetworkinc.org
Seeks to increase local and national attention about
the impact breast cancer has in the African-American community. |
Susan G. Komen Breast Cancer Foundation
800-IM AWARE (800-462-9273)
www.komen.org
Provides breast health and breast cancer educational
materials, holds events around the country, advocates for breast
cancer research and prevention and funds research. |
Y-ME National Breast Cancer Organization
800-221-2141
www.y-me.org
Provides open-door groups, early detection workshops
and support programs. |
BreastCancerStories.com
603-759-5640
www.breastcancerstories.com
BreastCancerStories.com
is an online support community where those touched by breast cancer
can share their experiences with loved ones and with one another.
|
Colorectal Cancer
Colon Cancer Alliance
877-422-2030
www.ccalliance.org
Offers patient support, a resource center, news, research advocacy
and events. |
C3: Colorectal Cancer Coalition
703-548-1225
www.fightcolorectalcancer.org
Advocates for research to improve screening,
diagnosis and treatment of colorectal cancer.
|
Esophageal Cancer
Esophageal Cancer Awareness Association
866-730-ECAA (866-730-3222)
www.ecaware.org
Promotes support for esophageal cancer patients and
caregivers.
|
Head and Neck Cancer
Support for People with Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org
Promotes support for esophageal cancer patients and
caregivers.
|
Kidney Cancer
Kidney Cancer Association
800-850-9132
www.kidneycancerassociation.org
Offers information about the diagnosis and treatment of kidney
cancer, sponsors support groups and provides physician referral
information.
|
Leukemia / Lymphoma / Myeloma
The Leukemia and Lymphoma Society
800-955-4572
www.lls.org
Provides financial aid for specified treatment
expenses and transportation, family support groups, First Connection
(a professionally supervised peer support program), referrals and
school re-entry materials. |
Multiple Myeloma Research Foundation
203-972-1250
www.multiplemyeloma.org
Supports research grants and professional and patient
symposia on multiple myeloma and related blood cancers.
Provides a newsletter, referrals and information. |
National Marrow Donor Program
800-MARROW-2 (800-627-7692)
www.marrow.org
Keeps a registry of potential bone marrow donors and
provides information, patient advocacy aid assistance and free
patient education materials.
|
Lung Cancer
It's Time to Focus on Lung Cancer
877-646-5864
www.lungcancer.org
Offers education, resources, clinical trial
information, support groups, teleconferences, an e-newsletter and
news updates. |
Lung Cancer Alliance
800-298-2436
www.lungcanceralliance.org
Offers educational programs about lung cancer,
psychosocial support and advocacy about issues that concern lung
cancer patients and those at risk for the disease. |
Lung Cancer Support Community
www.lchelp.org
A collection of patient discussion threads and forums
with broad participation that helps foster a true sense of community
for patients and families of those with lung cancer. Funded by the
LUNGevity Foundation, the only organization in the United States
dedicated exclusively to funding lung cancer research. |
Mesothelioma & Asbestos Awareness Center
www.maacenter.org
Mesothelioma is an aggressive form of cancer caused
primarily by the inhalation of dangerous asbestos fibers. Aims to
improve public awareness and offers resources and information on the
disease.
|
Ovarian Cancer
Ovarian Cancer National Alliance
202-331-1332
www.ovariancancer.org
Works to increase public and professional
understanding of ovarian cancer and to advocate for research.
Distributes materials and sponsors an annual advocacy conference for
survivors and families.
|
Pancreatic Cancer
Pancreatic Cancer Action Network
877-2-PANCAN (877-272-6226)
www.pancan.org
Educates health professionals and the general public
about pancreatic cancer to increase awareness of the disease.
Information about support networks, clinical trials and
reimbursement for care are available.
|
Prostate Cancer
National Prostate Coalition
www.4npcc.org
Provides outreach, awareness and advocacy for
prostate cancer. |
US®TOO!
International
800-80-US TOO (800-808-7866)
www.ustoo.org
Educates newly diagnosed prostate cancer patients,
offers support groups and provides information about treatment.
|
Sarcoma
The Sarcoma Alliance
415-381-7236
www.sarcomaalliance.com
Provides education, support and guidance in finding
medical providers, treatment options and various other information
sources. |
Sarcoma Foundation of America
301-520-7648
www.curesarcoma.org
Raises funds for sarcoma research, patient networking
and support.
|
Skin Cancer
Melanoma Foundation of New England
(800) 557-6352
www.mfne.org
The Foundation also assists patients and their
caregivers struggling with melanoma by offering support groups,
educational programs, and Billy's Buddies, a new one-on-one patient
advocacy and support program. These programs are all free. |
Melanoma International Foundation
888-463-6663
www.melanomaintl.org
Educates public on prevention and early detection of
melanoma, coordinates local screening and education programs and
serves patients and their families by operating a toll-free
patient/family hotline for those battling melanoma. |
Skin Cancer Foundation
800-754-6490
www.skincancer.org
Increases public awareness of skin cancer, and
conducts public and medical educational programs. |
The Shade Foundation
866-41-SHADE (866-417-4233)
www.shadefoundation.org
Founded by Shonda Schilling, wife of Red Sox player,
Curt Schilling and melanoma survivor. Dedicated to eradicated
melanoma through education of children and the community in the
prevention and detection of skin cancer and the promotion of sun
safety.
|
Thyroid Cancer
ThyCa: Thyroid Cancer Survivors' Association
877-588-7904
www.thyca.org
Provides support, education and communication for
thyroid cancer survivors, their families and friends. |
|
|
|
|
Local Links |
www.MaineHealth.org |
www.GoodHealthMaine.com |
www.emh.org |
www.TrueNorthHealthCenter.org |
www.MercyHospital.com |
www.MaineCancer.org |
Maine Medical Center - Cancer Care |
www.cancerconnectionsmaine.org |
www.CancerCareYorkCounty.org |
eHope Foundation - Brings family & friends together
to help cancer patients |
www.ptla.org
Pine Tree Legal provides free legal help to
low-income people living in Maine. There is no charge for services,
but you may be asked to help with court costs. |
Metta MassageTherapy
Therapeutic and Relaxation Massage
Specializing in Cancer
and Chronic Conditions
www.mettamassagetherapy.com |
